Twice a week, every Monday and Thursday afternoon, I go to physical therapy at Phoenix Children’s Hospital. Due to the complications of hemophilia, I have severe arthritis in three joints. My right ankle from being a child and always spraining it, my left knee when I hyperextended it playing football as a kid, and my right elbow that was shattered as a teenager when I was assaulted by a police officer.
My physical therapist is Heidi and has healed so many people and made them walk again, I’m sure she received her training from one of the apostles. As I arrived for my PT, there was a girl walking on the treadmill. I always use the bike, but last week I graduated to the treadmill since my joints are now stronger. I was looking forward to the treadmill but this young lady was using it, so I went back to the bike instead.
Having hemophilia has exposed me to a lot of people with cancer. Don’t believe me? Just look up a cancer doc. They are almost exclusively called hematologist/oncologist. Cancer docs are blood docs and blood docs are cancer docs. I won’t go into why this is but trust you me, it was and is a blessing to people diagnosed with hemophilia. Every med student wants to cure cancer, no one one to work on hereditary bleeding disorders that effect zero-point-no-one of the population. So by default, we with hemophilia get some bright guys and gals who work on us.
When people witness or hear about my dealings with hemophilia, a lot of sympathy gets thrown my way. Please, no need. All my life I shared waiting rooms with kids suffering from cancer. I was going to make next year’s annual appointment, most of them would not.
The girl on the treadmill was obviously recovering from cancer. Her hair was nearly buzz cut short, but growing back. I could not see her face because she had on a medical mask on and the physical therapist was gowned up as well.
While she walked, I peddled. I decided to multitask and check my e-mail on my phone. I read a great post in my in-box by Chris Guillebeau, author of one of my favorite books, The Art of Non-Conformity. The name of the post is Most People Are Good. You can read the post here. http://chrisguillebeau.com/3×5/most-people-are-good/
In it, he basically challenges the notion that children shouldn’t talk to strangers, and I couldn’t agree more. It’s a strange concept to grasp at first but it makes total sense. Most people are good and not to be feared. All we do as adults is place our jaded outlook on kids. We tell ourselves, “I’m telling little Cindy not to talk to strangers to protect her,” but what we are really saying is, “I trust no one and only see and expect the worst in people and little Cindy needs to learn to have that rotten perspective like me too.”
One day, my mom, my niece, and myself were traveling somewhere in my car. My niece had done something wrong and my mom and me were piling on her. From the back seat, full of stress and frustration, she yelled, “OK!”, as to say enough. And she was right. We were filling her with self doubt, needlessly hammering a point she already knew.
Too many times, we adults think we have things figured out. In our attempts to help we at times harm more than often.
The little girl finished with the treadmill and sat down to start on some upper body exercise. That was right about the same time I finished reading Chris’ post. And like on queue, she did not listen to what all those scary adults told her and she talked to a stranger; me.
“Don’t your feet hurt?” she asked me.
“Yeah,” I answered, “but I know that the more I do this, my feet will be stronger so they’ll hurt less later.”
“How long are you going to be on there?”
“15-minutes. And you? How long were you on the treadmill?”
“25-minutes.”
“Wow! Hopefully I get as good as you one day.”
Even though she had her mask on, I could see her facial muscles make a smile.
I smiled too.
Most people are good. The stranger that talked to me today reinforced that.
Last night I went to my first, full symphony. It was part of The Phoenix Symphony’s Rediscovered Masters series, celebrating the works of brilliant men who survived or lost their lives during the horrors of war.
That evening’s official headliner was violin virtuoso Concertmaster Steven Moeckel. He conducted the third and final piece by Mozart. You can read about his perfect performance here. Before that was the evening’s titled piece Suite for Threepenny Opera, composed by Kurt Weill, a German Jew who fled to America to avoid Nazi persecution. However, the best piece of the evening was the first, Study for Strings by Pavel Haas.
As of late, I’ve been listening to a lot classical music. Going to a symphony has been something I’ve always wanted to do and that morning I received an e-mail that that evening’s performance had tickets available for only $18. Without giving it a second thought, I paid the 18-bucks and went about my day. After seeing the United States draw against Argentina I quickly made it home from the bar for a quick change and proceeded to the symphony.
I went by myself. Whenever I go on one of my solo adventures, there’s a mix excitement and nervousness.
As I picked-up my ticket from will call, I knew full well that I was going to be in the nose bleeds since I bought the least expensive ticket possible, in the D price range. To my pleasant surprise, I was placed in the fourth row. Later I realized, that being that close to the musicians is considered a bad thing, but not to me! The acoustics were great and being able to see the ensemble at that close a range was wonderful. I even had the opportunity to make eye-contact with some cute violinists. Excellent.
Sitting there, taking in the new sights and the sounds of the musicians tuning their instruments was overwhelming, in a great way! That’s when I read my program and first learned of Haas’ story.
A Czech Jew, he suffered under Nazi occupied Czechoslovakia. As the situation worsened for the Jewish community in his country, he saved his wife’s life… by divorcing her. You see, she was not Jewish and to save her from the growing oppression of Jews he had no choice. The closest thing he ever did for her was let her go.
Eventually he was arrested and taken to Theresienstadt, the Nazi’s propaganda ghetto that they regularly showed film of to display to the world how “well” they treated their prisoners. While there in the the prison, now named Terezin, he wrote the piece Study for Strings. Nazis even had film of one of the performances to show their “humanity”.
Shortly after that film, he was transferred to Auschwitz and promptly killed in a gas chamber.
Reading about this before the performance only heightened my nerves. I was a ball of energy, filled with conflicting emotions of excitement and sadness; joy, at my external surroundings and internal reflection, on learning his story.
Then the concert began.
I was expecting a sad, somber piece, considering the conditions he lived in. It wasn’t. Neither was it an over-joyous Nazi contrived propaganda piece. When you listen to it, you get the sense of anxiety and confusion. It was, and is, a work of perseverance. Although tomorrow is uncertain, one can also take away it’s fighting spirit. The work is a fight, no question, and does not claim victory. But it neither concedes defeat.
In October of 1944 he was murdered inside a gas chamber. A death too cruel for an animal, and yet that’s how he met his end. Naked, choking to death with others, surprised at the cruel deception, clawing at doors that would not open. But he really didn’t die that night.
For one night, nearly 70-years after his death, he shared his joy and love for life with me and thousands others. His hands were at work once again through the fingers of musicians. He smiled again through the faces in the crowd. And at the end, we thanked and celebrated him with applause. Celebrating not only his masterpiece of music, but also the masterpiece that was his life.
His life was taken away by an act of evil and cruelty. But his spirit and legacy will live on forever. And that, no one can kill.
The purpose of this post is to help you make your goals and aspirations more attainable and in turn, more possible in coming true. Whether you want to learn a new skill set like a new language or fly a plane, or if you want to reach your own personal goals, be they fitness (lose fat, gain muscle), learn to be a writer, etc., this posts aims to help.
First Things First: Who The Heck Do I Think I Am?
I am by no means a role-model who has climbed Everest, made my first million at the age of 18 or has expertise in any one field. In fact, I am one of the most flawed individuals in need of help I know.
I have, however, done a lot more than many. I taught myself guitar (just campfire good, but better than most) and a third language, Portuguese. This year I started on my path towards the American Dream; I started my own business. I have also faced some of my fears (learing to finally swim) and have become a faster reader and type at higher speeds. All these things did not just come to me. I worked on them and all had their difficulties. But I have had lots of success, and if you are interested in learning a few of my short cuts and most importantly, what not to do, then please read on.
Make Mistakes. It’s OK. I have failed over and over and over again in my life and that is why I succeed.
–Michael Jordan
All the great home run hitters also have another stat that they lead in that no one likes to talk about; strikeouts. To succeed in anything you have to make mistakes. A lot of them. It is very uncomfortable and this discomfort, I believe, is the #1 reason people fail when trying new things. Why? Well tell me if you enjoy any of these things.
-Looking foolish to others as you struggle.
-Feeling dumb. Getting frustrated.
-Not making any perceived headway.
-Getting bored.
-After failing and failing, you try again and fail again.
Now imagine all this happening… everyday. Doesn’t sound like much fun does it? Well anyone who got good at anything had to go through all these trials and tribulations. And if you want to succeed at any of your goals, you will too. But I do have some good news. It’s not as bad as it seems.
Reframing When you change the way you look at things, the things you look at change.
–Wayne Dyer
Reframing is a word that came from the NLP (Neuro-Linguistic Programming) world. Basically, it means taking a different spin on things. I just like to think of it as, quit being such a negative Nancy and see the good in everything. This positive outlook spills over to other aspects in life, so that’s another plus.
If you are trying to learn a new skill set, like say, learning a new language, it’s easy to fall back on all the negative stuff. “Why can’t I remember that word?” “I can’t try my Spanish with a native speaker yet! I’ll look stupid!” “I just can’t learn a new language! Some people are better than others at learning that.” And the pity pot goes on and on and on.
Are some of those things true? Sure I guess. But you should look for other truisms as well. “When I DO learn that word I’m just that much closer to fluency!” “If I speak Spanish to her, I’m sure she’ll appreciate that I’m trying! Plus I get to meet new people, make them smile with the fact that I am trying to learn her culture, and if I do make mistakes, great! I know what not to do the next time!” “No one is hard-wired at any certain skill sets. If someone can do something, then I can too! There’s a term for people who think some are better than others… racists!” and so on. These are also a very much true and more so. Plus, they make you feel better, and are infinitely more likely to create results in your goal. After all, making excuses never got anyone anywhere.
Working For It Is Better Than Getting It All achievements, all earned riches, have their beginning in an idea.
–Napoleon Hill
There’s an example that goes like this. You were dirt poor and worked your way through college and started your own business. It was hard and filled with more heartache than joy. After years of penny-pinching and sacrifice, you saved up enough money to buy your dream car, a Lamborghini. You also just happened to enter into a raffle and won the exact same car. You now have both in your garage. If one was stolen or destroyed, which one would hurt more? The first one right? It represents a whole lot more than just a car. That Lamborghini is your goal in a sense.
We respect men like Gandhi and Dr. King not jut because of what they taught, shared and believed, but because of the trials they went through. And they were both molded into the characters that we revere today because of those struggles.
You might think it’s unfortunate that we just can’t take a pill and in a few weeks lose all body fat and be ripped like 1980’s Schwarzenegger. I think it great. Good things come to those who work hard and when you reach any part of your goal, however small, you are doing more than the next man who just sits there and waits.
You Deserve Squat Deserve your dream.
–Octavio Paz
Most people think that life owes them something. It doesn’t and that’s a good thing! Someone is not spending their days working on a way to make you financially, physically, or emotionally healthier. “But I’m a good nice person!” Well the world is still going to run you over. “Well I’m a mean, defensive, bitchy person!” Well that same world is also going to run you over. You’re just going to be more miserable.
Nothing is just going to fall on your lap. It’s there though. All you gotta do is take it.
Gettin’ It Done It takes as much energy to wish as it does to plan.
–Eleanor Roosevelt
Now that we got the right state of mind, how does one exactly tackle these things? For starters, be stubborn.
I remember when I was learning guitar, man, I made a lot of people angry. I’d go everywhere with my guitar and play the same chords and the same song over, and over again. People would try to politely tell me to stop. But nope, I kept at it. My stubbornness was rewarded and I can pick up a guitar and play a thing or two. Am I good? Not really! Am I OK getting by and able to learn any song I wanted in a few weeks time? Sure. And none of that would’ve been possible had I not had a thick skull and brushed off the naysayers.
Just Do It! He that is good for making excuses is seldom good for anything else.
–Benjamin Franklin
Seems obvious right? Well most things are. Wishing to learn Japanese isn’t going to make it so. Reading about Hiragana, buying Manga, getting a Kanji tattoo, these are all superficial things. Get out there and freaking do it already! How ever small the step, it’s still a step. When you do hit a wall, get excited! You’ve done it before and know how great it feels.
Put Yourself Out There Life is not accountable to us. We are accountable to life.
–Denis Waitley
One of my favorite language learning books is Benny’s Fluent in 3-Months guide. One of the best bits of advice was to go out and make a language blog. The rational behind it is if you put yourself out there, you are more likely to do it. Seriously. Think about it for a second. I want you to think for a moment what goal, resolution, whatever!, you would like to accomplish or be better at by year’s end. Got it? Good. Go post it on facebook to all your friends and family to see. Not so ready to do that are you! You’re afraid that if you fail, everyone will hold you accountable. And that is exactly why you should. I’m not saying you start a language blog like I did, but I do think you should put yourself out there. It is a great motivator. And for those of you wondering, my goal is to learn Russian in 2011. So there.
Make Your Goals Smaller, More Realistic To be realistic today is to be visionary. To be realistic is to be starry-eyed.
–Hubert H. Humphrey
And finally, the title of this post is, “Resolve To Not Have A Resolution” and I mean exactly that. Resolutions are usually these intangible, long away goals that are not very well planned out. I want to lose X pounds this year is too vague and too far away! You need to make your goals two things, a) shorter, and b) better defined.
There is nothing worse than a goal the size of twelve months! It starts plenty of bad habits. For one, there is no pressure to start. I mean, you have a year right? And if you do start right away, it’s easier to fall off. I mean, you have a year right? Goals should be a month-long, preferably a few days and weekly ones.
With Russian, I hope to have Comprehensive I of Russian Pimsleur done. However, if I get 10 to 15 of the 30 done, I’ll also be very happy. The point is, that’s more of a measuring point I would like to reach. What I plan to do is at least one hour (two half-hour units, the same one, twice a day) of Pimsleur a month. Will I have all 30 Units done or just 10? I’m not sure, but even if I just get up to 10 I will already be conversational! And that’s 10 more Units I have ever done and 10 more than you!
That’s All Folks!
And that’s about it. There are other things I did not go over and each of these things I touched on were so brief, each have had books written about them. But I hope this give you a primer on how and where to start.
The bad news is, you have the biggest hurdle in your way. You.
The good new is, you have the greatest ally in the world. You.
Nike says, “Just Do It” but most people are of the mindset of “Just Talk About It”. We live in a world of big dreams and small actions, and I for one am tired of it. Take for instance, Post-inspirational-quotes-on-facebook, girl. She sucks. These ladies (and in all fairness, some guys) spend their free time researching online motivational quotes and then present them to their audience (friends) as something people should take away. Really? You mean I’m supposed to get energized because your lazy ass came across a quote while you were sucking the Dorito’s cheese off your fingers? Well shit. Excuse me while I go skydiving Gandhi.
I think they do this for several reasons. For one, it resonates with them in a personal level in what they believe they are (they’e not). It also is an ego feeder, “Hey everybody! Look at how deep, smart, complicated, and motivated I am!” Then other gals working on their own ass-blisters can post, “Wow chicka! That was deep, smart, complicated, and motiving!” Then they text each other offline about Glee.
In this great post, Corbett Barr talks about how people are cheapening, what were once, great words. Anyone can just grab these and pass ’em along. What I want to hear is your words on how you overcame, built, something.
I have lots of quotes up. And I read them all the time. Not so I can show others how to think, but for me! One of the most famous quotes that a lot of people use is:
Insanity: doing the same thing over and over again and expecting different results. –Albert Einstein
I love that one too. People always post it, as to say, “Hey, dumbass over there. If it doesn’t work, stop doing it and try something else!” Why do I have it up? So I can tell myself, “Hey, dumbass in the mirror. If it doesn’t work, stop doing it and try something else!”
Sorry to be so blunt (no I’m not) but if you are just another one of the many people going through the expected motions of life, that’s fine. Truly it is. It’s your life and I’m happy if you’re happy. But please, don’t expect me or anyone else to be moved or touched because you have internet access and came across something catchy.
If you do post a quote, please, reference it to how it pertains to something in your life. Why do these words strike a chord with you? What pass experience, good or bad, relates to it?
From now on, every time I see or hear someone doing this, I will always referance one of my favorite quotes from one of the greatest minds in history:
So. You’re probably wondering what this blog is all about. Well, try not to over think it. The purpose of this blog is a release of my thoughts, feelings, and ideas. That’s really it. I’ve addressed everything from politics to fashion. So don’t be surprised if one post is about Ireland and it’s declining economy followed by a post about Project Runway. That’s also why I created my language log site. That blog deals with one subject only; learning new languages. It’s something I’m passionate about, good at, and deserves it’s own little corner of the World Wide Web. On the other hand, this site is a firehouse for me scratching my brain itches. Haven’t you always wanted to get something off your chest? Well, I have, and it… feels… great. These are my ideas, and to finally put them in a succinct, printed manner is a wonderful feeling.
Sure, if I wanted more readers and possible monetization, I should pick a central theme and run with it. But that’s not what this is. It’s my online journal and that’s that. If you don’t like it, well then you suck because I’m the essence of awesome wrapped in a very attractive package of flesh.
So it’s been a few weeks since my friend Jessie Grossman unexpectedly passed away at the age of 29. I can’t possibly put her life and the memories she gave me into words. And that’s not what I’m trying to do with this post. Heck, I still can’t comprehend that she’s gone. I will just simply write what I’m feeling now, at this early time of dealing with loss.
Here is one small story. We buried Jessie on Friday, October 15th. The day before, I went to church.
I was full of anxiety. I had drank the night before, trying to digest the incomprehensible news. I barely made it to church and grateful I didn’t have a panic attack. I decided to light a candle for Jessie, so I went to the church shop. Don’t worry, Jessie was a good Jewish girl but loved other cultures and customs. Her house had images of the Virgin Mary while her hands would be painted in Mehndi. All my Jewish friends would not like it if I lit a candle in their memory inside a Catholic Church. But I am confident that Jessie would be bouncing in happiness. Inside the shop, there was three different sized candles. The medium sized one, which would burn for five days, was a bright red unlike the other two which were white.
Since I’m new to my faith I didn’t know (and still don’t know!) if I did it right. But I went into the cathedral, placed the candle where a sliver of sunlight would hit it and lit the candle with the wicks provided there. I kneeled and prayed a little prayer. There was no knee rest, so it was pretty painful. After a few words to God to take care of her, I did the sign of the cross and left church, this time with less anxiety and a clearer mind.
I came back about a week later. I knew that it was over five days but I was sure that the candle would still be there. It wasn’t.
The reason I tell this story is not to talk about myself. You see, Jessie was with me through all of that. I arrived full of anxiety because I had not done the smart thing in taking care of myself, just like Jessie would. I picked the red candle because it was loud, demanding and deserving of attention; also Jessie. I went in there not really understanding yet appreciating everything. Unsure, yet resilient to go forward. Jessie and Jessie. And after leaving I felt better than I had arrived. The same effect Jessie had on me.
Finally, when I went to see the candle, it was gone. Just like her. Nothing for me to see, no warning. Just gone, with me and my wits left to try to understand what happened.
Like a candle, Jessie’s life was bright and beautiful to see. Painful at times… calming in others. That was the duality in the beauty and tragedy of her life. It burned brighter than most. It also burned out quicker than most.
Like that candle, her flame will never be lit again. We will never see her beauty, nor her feel warmth.
But just because she’s gone, doesn’t mean that her fire can’t live inside of us. Her light lives on inside those she touched, for her fire and passion for life was that potent. Her light can still illuminate our minds and calm our souls.
I still fail to fully understand that Jessie’s gone. Maybe it’s because she has really never left.
The red line represents the path of the Sun, through the year. The red/green is the Earth’s path. The place where these two cross, is the spring equinox.
I’m using this blog post to talk about three common misconceptions/misunderstandings. These are very prevalent and I come across them what feels like every other week. If I don’t address this, for once, I’ll go crazy.
What’s Your Sign? No It’s Not
Whenever a girl begins with, “Do you know what my horoscope said?” you can answer confidently, “That you’re crazy.”
I guess that my love for astronomy and the skeptic in me combine for a really frustrated guy when it comes to astrology. I can’t even begin to count the ways how dumb it is. But the best part is, all these folks that think they know their signs, don’t.
There are many different branches of astrology and many that are much older, but the one that we use here in the States is what’s called “Western astrology”. This system of the twelve constellations came around the 2nd century AD. And in Western astrology, sometime ago, someone got lazy and stopped looking at the sky because the position of the stars had changed! It takes the earth 27,000 years to go through all 12 different zodiac signs. It’s substantial enough that no one really noticed that the position of the constellations changed, yet it’s small enough that the small change is noticeable after only a few hundred years.
There are a few people that use the correct form of Western astrology, called Sidereal astrology. However, most Americans use the out of date version, Tropical astrology.
So what is your real sign? The table below should clear that up. (more…)
One of the major, recent stories to come out, was when acclaimed physicist, Stephen Hawkins, made a statement that he believed that God does not exist. In the book excerpt, Hawkins concludes that, “…recent advances in cosmology suggest, the laws of gravity and quantum theory allow universes to appear spontaneously from nothing. [continued] It is not necessary to invoke God to light the blue touch paper and set the universe going.”
A Tumultuous Relationship
Historically, the relationship between science and religion has been an abusive one with religion doing all the damage. All though in a western society like ours, Christian repression of science is always displayed as an example, science has long received its arrows from all types of other religions. Everything from Buddhism to Islam have taken their shots.
Many scientists – understandably so – hold a grudge towards religious institutions on behalf of their long departed, and well-suffered, brethren.
Both claim to seek the same answers. However, the bow is now in the hands of science and the target is now painted squarely on God.
Roles Reversed
The strange thing is now that we live in a time where thoughts of science are no longer repressed for the threat of their opposing views, science on the other hand is on the attack for the exact same reason. If one side comes to a different conclusion than the other, then the process of deduction itself is their proof-positive that the other sides methods, system and beliefs are wrong. It was wrong for religions to do it then, and it is wrong for science to do it now. The argument is trivial and the basis of that argument is childish and best. Reciprocity of the wrong is not equal to the original wrong, but even more so since it exemplifies that the first receipt learned nothing of the injustice.
As you can see in this video, famed geneticist Dr. Francis Collins surmises my point by saying, “And some have seen faith as therefore a threat to the scientific method, and therefore to be resisted.” However he continues that, “Faith in it’s proper perspective, is really asking a different set of questions.”
A Different Set of Questions
Atheists (and those that hate religion) will use Dr. Hawkins’ words to prove their points, yet won’t except the other aspects of agreeing to such an empty hypothesis. If he is correct, then these people should not tell others that they love them, nor listen to music (or embrace any form of art for that matter). Since we are all godless, souless creatres, what need and purpose is their in life than to get solid black-and-white answers?
Stephen Hawkins is a brilliant scientist. Jennifer Lopez is an excellent dancer. Just because these two are experts at their respective fields does not make them go-to’s on subjects outside their knowledge.
Everyone that knows me, knows that I have a deep interest and love in science. Astronomy is one of my favorite hobbies that I have dabbled in as a child. Science should be embraced and allowed to come to every possible conclusion. Science and all of it’s branches have found many answers, and continue to do so, to questions that no religion could ever answer.
However, the quest for understanding God and all that He created already has an answer; we don’t have one, nor will we ever. On our time here on earth at least. There is a reason why we in the Catholic faith call these “mysteries”. I, and others, will continue to search for these answers. Even if we know that our search will provide no definitive answer.
The greatest and most wonderful things in the world also have the greatest questions. And their answers cannot be figured out in a lab or on a white board. What is a mother’s love? What is happiness? Why do this? Any of this! Where did we come from?
Just because I cannot answer these questions, does not mean I won’t try to understand them. And the philosophy of a religious book provides more clarification for those most important questions than any mathematic formula could ever wish to.
Attempting to keep my diagnosis secret has always been a huge burden that I have placed on myself. I’m tired of living a lie. Plus, it’s just not that big a deal. If I continue to hide what I have, I continue to hide what I am. And guess what? I like me.
First, to catch a few of you up. I was born with a bleeding disorder called hemophilia. I won’t get all technical with you because if I were you, I wouldn’t want to hear the bore-fest either. The CliffNotes version is that my blood does not clot. This causes massive bleeding, mostly in the form of bruising. That’s all a bruise is really; a cut under your skin. So when you twist your ankle at the hoops court, you lose two days with nothing more than ice and bandaging as treatment. Me? I’m out of service one month plus, with a baseball sized hemorrhage stuffed into my skin.
Also, add to this that blood has these wonderful proteins and enzymes that eat cartilage, you soon have a crippled, wobbled teenager with arthritis.
However, treatment was found. This clotting agent is simply referred to as, “Factor”. It has gone through many changes and alterations throughout the years, but in the late eighties, early nighties, it was derived from human plasma. Plasma is another fancy-shmancy word for blood. It makes me think of Ghostbusters. Any who, you don’t need to be Columbo to figure out where this story goes. When I was a child, anywhere from 5 to 10 years old, I contracted HIV through my factor.
The medication that was suppose to save my life, is now the same medication that is trying to kill me.
Now, there has been a lot of tears dropped by me and my family because of this. But I’m not here to get into that. In fact, one of the main reasons I’m writing this is because I’m ready to just move past all that. I will tell you, however, the stigma that people with HIV have to be burdened with, is just terrible.
One story I will share is that once, a small group of friends found out about my condition but the good news was, nothing really changed. However, one night we were drinking (like any good set of teenagers) and someone had a bottle of liquor. I remember my friend, was not talking to me and made sure that I didn’t drink out of the shared bottle. To this day, that is one of the most difficult things I’ve ever went through. People being afraid to touch you or to share the same space with you as if your being itself was deadly, has to be one of the worst feelings a human can go through. A modern-day leper. Fortunately, most people will never have to endure that. I did.
However, I hold no ill will towards my friend. Society is so in the dark about this; how can I say I wouldn’t react the same way too? And in all fairness to him, that was many years ago. We have since shared many a bottle, hugs, and tears.
So that’s a major reason why I have tried to keep this close to my chest. Whenever I see a birth control medication commercial, they always warn, “This does not stop the spread of sexually transmitted diseases and HIV”. Wow. Great. Make sure to give extra special scary notice to HIV. Also, if a side effect was the ability to stop all know diseases, don’t you think that would be the selling point and not period regulation? But I digress…
What I’m trying to ram home is, even though we have gotten better educated about HIV, we still have a long way to go.
The other reason I have not advertised this, I want to be treated the same. It’s funny, but the people who are always at the doctor’s, or have the most medications, are the ones that are the least sick. Meanwhile, us folks walking around with real issues have to get dragged to our appointments. We just don’t like the attention. And it’s the worst kind of attention: pity.
I noticed that people who knew about my condition would talk to me like a toddler. If they got mad at me, they would hold their tongues. I never liked that.
I am not the parasite floating inside my blood stream.
I am not my skin color.
I am not my gender.
I am a child of God, just like you. Nothing more, and nothing less.
So to this day, there is nothing worse to me than a disingenuous person. I can smell you and your fakeness a mile away, so don’t even come near me with that.
Lastly, I have to stop denying it because it truly has been a blessing. It may probably be the best thing that has ever happened to me. If I were you, having just read that, I’d be calling “bullshit”, but it’s true! Let me try to explain.
Going through all this has given me crazy strength, and above all, a perspective on life that few have. This perspective is one of my favorite qualities about myself. How many 10-year olds do you know that have cried themselves to sleep because they would never be able to have children? That kind of introspective thought changes a person. Yes, I have faced many dark days brought onto me from even darker people. But you know what? I have also been a witness and recipient to the most wonderful acts of kindness and love that people can only dream of. And that’s what I choose to remember and that’s what I choose to move me forward.
Nearly all my friends have something to do with my hemophilia and HIV. My beliefs, sense of humor, and smarts, are all things I cherish and most importantly, all these things are derived of my life’s experiences. Would I rather not have hemophilia and HIV, and trade that in to be just another dumb, unfunny guy, who does not understand how the world works? Heck no! That would make me a democrat! 🙂 And most importantly, I would not have you.
Even in romance it has helped, believe it or not. Since I won’t sleep with someone unless I disclose, I have never had one night stands, or flings. And trust me, my sexy, smart self could have had a few, let me tell ‘ya. 🙂 Not only does that mean that I have only been with women I truly cared about, each of these women have been truly beautiful. Do you know what kind of awesome women it takes to sleep with someone who has HIV? I do. They are caring and understanding. They are loyal and confident. They are kind and generous. They are selfless and supporting. And one day, I’m guaranteed to have that as a wife. How awesome is that?
So please, don’t feel sorry me. With the miracles of science I plan to outlive all you that are reading this. I will have my own, healthy children. Don’t runaway either. I don’t want to hear that your sorry, or that your happy for me. Honestly, I’d prefer if you said nothing at all. I’m just like you and your just like me.
I’m HIV positive. And you know what? It’s not a big deal.
These are words we all want to say, usually proceeded by some purchase, event, or other goal being reached. “I have a Ferrari, now I know I’ve made it!” or “I traveled Europe, now I know I’ve made it!”
This is the part of the post where after talking about these superficial goals, how my NIKIMI moment is something more altruistic. Sorry to spoil this part of the movie, but sometimes the guy does not get the girl, the bad guy wins, and yes, a goal in life is selfish and materialistic.
My NIKIMI moment will be when I’m able to where a suit everyday. That’s it.
I thought the goal was to get out of the suit?
Everyone knows how poor my upbringing was. When I was a kid going through some growth spurts, my parents refused to buy me anymore shoes. When I came home one day with bloody toes however, money was miraculously found. Having two older sisters, clothing is more important to women. Plus, one pair of jeans was good enough for two. I wasn’t so lucky.
When I would get promised a new shirt or pants, “In three paychecks”, I couldn’t wait! Having such little clothes growing up made me obsess about fashion. I wish I could wear this and wear that, I’d think. That’s a big reason people with lower income wear clothes that’s a little “louder” than most. You have to make a major statement when you’re hindered with meager means! Hey, when you only have three pieces to work with, you better believe you’re going to notice it – whether you like it or not.
The music video, “Walk This Way”, by Aerosmith and Run DMC exemplifies this point perfectly. I always wondered why rich kids would pay money for ripped jeans, faded shirt, FLIP FLOPS!, and all other things that screamed of poverty. When you see this video, you see two fashion world’s collide. On one side, you have these formerly poor guys in these lush Adidas track suits with these obscene gold chains hanging around their necks. On the other, you have these Boston suburban kids who dress in ragged clothes that looks like they just ripped up their mother’s dresses.
The message is the same, “The grass is always greener on the other side.”
My dad. My artistic inspiration.
Some may wonder how my dad, a lifelong construction worker, can be the driving force for my love of art. Well, all art is creation. And creation is making something beautiful. To this day, I have a passion for architecture that was put into me because of him. I can look at buildings and skylines all day. I have a limitless curiosity on how things are made and built.
Also, my dad is a very proud man who has always taken the most pride in his appearance. He attempts flash and class all the time. It usually comes out more gaudy, but sometimes he hits the mark!
And I believe that buildings and shirts are just like paintings. All these things are created by artisans.
You feel only as good as you look.
So when you see me one day at a barbecue wearing a Calvin Klein suit, don’t ask me why I’m over dressed, come over instead and congratulate me for making it.
Life is too short to go through not looking great everyday.
Tony Hernandez dot co 